Patient Advocacy Manager

Why Join UsBe a hero for our rare disease patientsAt Ultragenyx we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to achieve this goal. Our vision is to lead the future of rare disease medicine by challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life‑changing treatments.Our commitment and care for patients extends to our people so culture is an essential cornerstone. We remain continuously focused on creating a supportive and inclusive environment of learning and growth so employees can thrive in all areas of their lives inside and outside of work.If you want to have a meaningful impact, do the best work of your career and grow a lot professionally and personally, come join our team.Position SummaryThis individual will be a part of the LATAM Patient Advocacy function leading the advocacy efforts for Mexico and Central America. The Manager works in close collaboration with the local Mexican team to lead the development and execution of the local advocacy plan that reflects the priorities and needs of the business. Externally the Manager will develop productive partnerships and facilitate dialogue with patient advocacy groups to further mutual interests and transform the care of patients. Internally this role will be responsible for incorporating the patient voice into the everyday operations of the company.Work ModelFlex: This role will typically require onsite work 2–3 days each week or more depending on business. This is a Fixed Term Contract for an initial period of 12 months.ResponsibilitiesServe as the primary point of contact with patient organizations in Mexico, Central America, and Ultragenyx.Coordinate local tactics specific to patient advocacy.Hold meetings and teleconferences with key stakeholders to align advocacy resources with development priorities and enhance program awareness and patient support.Attend key events and conduct surveys and research to generate new patient referrals.Analyze advocacy group resources to identify gaps in disease awareness and facilitate the information requirements of prioritized advocacy groups.Represent patient perspective during planning strategy meetings and contribute to the successful implementation of objectives.Identify and prioritize all patient organizations and affiliated professional groups for advocacy engagement, outreach to patients/physicians, and reporting on key metrics.Manage critical relationships with stakeholders and patient advocacy groups through compliant exchange of complex scientific information related to Ultragenyx’s product development and commercialization efforts.Support and oversee the Named Patient Program (NPP) process as needed.Maintain a primary focus on supporting Mexico and Central America.RequirementsProven experience in project management and patient advocacy.Experience with NPP access processes in Mexico.Experience with NGO management.Deep understanding of patient personal information management and relevant legislation for patient interactions.Experience in Patient Support Programs a plus.Bachelor’s degree in communication, psychology, or NGO management.Fluency in English and Spanish.Travel: approximately 40%.BenefitsGenerous vacation time and public holidays.Volunteer days.Long‑term incentive and employee stock purchase plans or equivalent.Employee wellbeing benefits.Fitness reimbursement.Tuition sponsorship.Ultragenyx Pharmaceutical is an equal‑opportunity employer and prohibits unlawful discrimination based on race, color, religion, gender, sexual orientation, gender identity or expression, national origin, ancestry, age, disability, marital or veteran status, or any other status protected by applicable federal, state, or local laws. Reasonable accommodation will be provided for all protected statuses or classifications. #J-18808-Ljbffr