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Patient Advocacy Manager
hace 2 meses
We are seeking a highly motivated and experienced Patient Advocacy Manager to join our team at Ultragenyx Pharmaceutical. As a key member of our patient advocacy team, you will be responsible for developing and implementing successful relationships with patient organizations in Mexico and Central America.
Key Responsibilities- Act as the primary point of contact for patient organizations in Mexico and Central America, ensuring timely execution of patient advocacy strategies and tactics.
- Interface with cross-functional teams to facilitate coordination of local patient advocacy initiatives.
- Conduct meetings and teleconferences with key stakeholders to leverage national advocacy resources and ensure alignment with development priorities.
- Attend key events, conferences, and conduct surveys to generate new patient referrals.
- Analyze advocacy group resource needs to identify gaps in disease awareness resources and facilitate information requirements for prioritized advocacy groups.
- Represent the patient perspective during planning strategy meetings and contribute to the successful implementation and achievement of goals.
- Identify and prioritize patient organizations and affiliated healthcare professional groups for advocacy engagement and direct patient/physician outreach.
- Manage critical relationships with stakeholders and patient advocacy groups through the compliant exchange of complex scientific information related to Ultragenyx areas of research, product development, and commercialization.
- Support and monitor NPP process as needed.
- Experience in dealing with patient services programs.
- Experience in NPP access processes in Mexico.
- Knowledge about NGOs management.
- Intimate knowledge of patient's personal information management and relevant legislation for interaction with patients.
- Experience with the design and implementation of patient support programs is preferred.
- Strong understanding of Mexican patient advocacy landscape.
- Proven project management experience.
- BS degree in science, health-related area, or NGO management.
- Fluency in English and Spanish.
- Travel: approximately 40%.
- Generous vacation time and public holidays observed by the company.
- Volunteer days.
- Long-term incentive and Employee Stock Purchase Plans or equivalent offerings.
- Employee wellbeing benefits.
- Fitness reimbursement.
- Tuition sponsoring.
- Professional development plans.
- Benefits vary by region and country.
Ultragenyx Pharmaceutical is an equal opportunity employer and prohibits unlawful discrimination based on race, color, religion, gender, sexual orientation, gender identity/expression, national origin/ancestry, age, disability, marital and veteran status, and any other status or classification protected by applicable federal, state, and/or local laws.